Here are some links that are my personal favorites and others that I will be adding as I interview Guests and become aware of other great sites.
Baby Hearts Press — resources for the congenital heart defect (CHD) community
Congenital Heart Defects.com — over 100 pages of free information for the CHD community http://www.congenitalheartdefects.com
Experience Journal — a project at Boston Children’s Hospital which encourages writing therapy for individuals dealing with hospitalizations
CarePages and CaringBridge — free websites for families in the hospital