Kristi Pena

Kristi Pena is currently a stay-at-home mom and caregiver to her youngest son Christopher. He was born in heart failure and given less than six months to live. He lived under hospice for 15 months until the discovery of a miraculous improvement. He has continued to do well despite the odds.  Kristi volunteers for Barth Syndrome Foundation, The Children’s Miracle Network Hospital Blair E Batson Hospital for Children, and several other various causes. 
 She helps new families by sharing her knowledge in resources and advocacy. She has written for Complex Child e-Magazine and guest blogged. She has met with various politicians advocating for congenital heart defects and rare disease. Kristi’s family makes various appearances for Children’s Miracle Network, traveling to Orlando and Washington DC. They’ve also been in countless news articles sharing their incredible story.

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