The major reason is because You Are Not Alone. Congenital heart defects are the most common birth defect, yet most people don’t even know this until they are personally touched by CHDs. Through advocacy we can help educate the public which in turn should free more money for research, resources for the CHD community, and perhaps someday, cures for these birth defects!
You may wonder how difficult it is to be an advocate. It’s not hard at all! You might want to speak in front of support groups or to groups of interested clubs or organizations. Toastmasters can help you if you would like to share your stories.
Other ways to be an advocate include joining groups which participate in advocacy projects, financially helping groups that advocate for the CHD community, writing about your experiences and sharing them via Facebook, your blog or other people’s blogs, newspapers or other media outlets. Every one of us has a story to share. We must all find ways to advocate for the CHD community but remember, you are not alone. If you would like to be an advocate and don’t know where to start, check out this website or http://www.congenitalheartdefects.com for more ideas.